Tag: Caregivers
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too angry to type
we all know the medical system is broken but I still had faith that the people were good. Today I am doubting the people. so much has happened in the last few weeks. Another infection led to surgery to replace the ureter stent with a bigger one. Constant pain for the past 2 weeks. Signs…
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break time
I’ve taken a wee bit of a break because it/I was too negative and had nothing to be positive about. Here’s a bit of positivity…Amy’s cancer didn’t show any sign of recurring. Yay! However, her kidney was full of fluid so one week ago she had surgery and is still dealing with discomfort. During my…
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grief
grief begins at diagnosis. When does it end? Perhaps never.
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caring
SELF-CARE FOR CARERS ‘While caring for a partner can be very rewarding, it can also place a strain on relationships,’ says Carers UK’s Emily Holzhausen. More than 75% of carers responding to the charity’s State of Caring survey said they felt stressed and anxious; 69% found it difficult to get a good night’s sleep and…
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sad…
some days it all catches up with me and I get sad. today I’m sad and mad about the times people have crushed my spirit by being critical or judgemental of me. By the lack of respecting my boundaries. By the losses. Like the time I asked if I could crash at someone’s house then…
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what can i say?
Amy has yet again another infection. Surgeon returned her call at 830pm. Ordered more drugs and admitted the surgery from last week won’t solve the infection issue. It’s outta his wheelhouse to fix it. sigh…big sigh… Monday we meet with oncology surgeons to discuss options. They will likely need to take healthy tissue from her…
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This is who we are
Carers are not hero’s. We don’t have magical powers. We don’t have a wand but we wish we did.We cry. We shake. We get overwhelmed. We worry…oh so much. We have feelings that get hurt. We get abandoned by people who think we should act differently. We are afraid. We are lonely. We are stunned…
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im sorry
im sorry I can’t be more positive. im sorry I can’t be more resilient. im sorry I’m so scared of the future. im sorry I set boundaries that you find hard to respect. im sorry I’m a challenge for you to understand. im sorry my life has had such a terrible impact on your life.…
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have the wheels come off again?
I don’t know how she copes. I don’t know how she keeps going. Wednesday she had surgery to replace her ureter stent with a bigger one. Surgeon said he lasered something but he lost me. 48 hrs later she’s showing all the signs of infection except she’s on antibiotics now. She’s cold and shivery, her…
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and again???
My prediction that the infection would go away but return in 2 days was accurate. Two days after antibiotics stopped Amy was hit with pain and a smell that is truly indescribable. The infection had returned but this time it was a new one and a bad one. Something to do with a pneumonia type…
Rainbows and Black Unicorns 