Rainbows and Black Unicorns

Tag: mucosal melanoma

  • How to support

    Most people think sending flowers is the only way to show support. They follow that up with “ call if you need anything”. I’m here to offer some other ideas. Very few of us will ask for help. It’s just uncomfortable and some of us have followed the therapeutic idea of asking for what you…

  • Aloneness vs loneliness

    I’m alone and I’m lonely. In my aloneness I’m getting some stuff done that I’ve been too busy or tired to do. That is wonderful. In my loneliness I find myself worrying about the past and the future. Will we ever get to travel? Will the cancer recur for the umpteenth time? We have an…

  • Not everyday is good

    My oh my, what an unbelievable day! The weather was awesome and some “things”got done around the house. That always feels good. The flip side wasn’t so good. The vet didn’t call with blood results. Hopefully, tomorrow. We did get a call from someone who was in distress. I won’t go into details but it…

  • Sadness

    I wish I could record videos. Lack of ability and hating the way I look on camera prevent me from trying. Amy’s sad today because she’s still so weak from sepsis. The drugs might be zapping her strength or the residual damage from sepsis might be the cause. She’s sad that she can’t do the…

  • I was wrong

    What was I thinking when I said I didn’t care if the cyber community read what I wrote? Today, I care because it’s a hard day. Amy is pale and fatigued. I’m anxious and feel like the next shoe is about to drop. I don’t know where that is coming from. It feels awful. I…

  • Gifts

    Can I make a few suggestions around gifts for the patient or caregiver? I am so grateful for everything people have done for us and I know it’s with the best intentions. But sometimes traditional gifts are not the most appropriate such as flowers or plants. As a caregiver the burden falls on me to…