Tag: melanoma
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have the wheels come off again?
I don’t know how she copes. I don’t know how she keeps going. Wednesday she had surgery to replace her ureter stent with a bigger one. Surgeon said he lasered something but he lost me. 48 hrs later she’s showing all the signs of infection except she’s on antibiotics now. She’s cold and shivery, her…
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another PRE-SURGERY day
And the anxiety is off the charts. I got some post op stuff organized like food and made sure things are charged. We had an updated convo regarding death, money and wishes and hopes for after recovery looking towards summer. It’s always so hard. I’m not driving her tomorrow and don’t know how I would…
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and again???
My prediction that the infection would go away but return in 2 days was accurate. Two days after antibiotics stopped Amy was hit with pain and a smell that is truly indescribable. The infection had returned but this time it was a new one and a bad one. Something to do with a pneumonia type…
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A month later…
Christmas was ok. Infection was gone and the mountains were awesome. We had a nice dinner with family and it was worth going. By the time we got home Amy had another infection. That got treated and then a new one developed. Omg it’s never ending. Friday she spent all afternoon in urgent care. They…
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crisis pt 2
After a weekend of uncertainty her bag started to drain. Yay! She wasn’t feeling the greatest but not sick enough to go to emerg. Hospital did arrange for her tubes to be changed today but rather than a leg bag they capped the tubes so it’s now totally flowing into her urostomy. Fingers crossed that…
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anger
Do you ever get angry? Do you get mad? Our society really frowns on any expression of anger even though it’s healthy. Of course, it can’t be free flowing and you can’t take it out on innocents so how do you show it? When is it allowed to be expressed and how. I’m in no…
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crisis pt1
It all started with two infections. Drugs weren’t working well enough to get rid of the bacteria. She smelled. Dr google says it smells like ammonia but it was more vile than that. It was offensive and I kept candles burning all the time. The more days this went on the more stressed I got.…
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movie
There’s are new movie on Netflix called “leave the world behind”. Can’t comment on the movie cuz we haven’t finished it. But Julia Robert’s speaks a line in the first 2 minutes that made me laugh, “ I hate people”. Yup, me too! I don’t want to be like this but gawd I’m so tired…
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i thought i’d be better
Nope, still mad at people’s insensitivity. I get it. I truly understand why people say stupid things about being positive blah, blah, blah. Right now though, it’s making me angry and I have no patience so it’s better if I just ignore them. Amy got drugs today to deal with infection. Symptoms are bothersome like…
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angry?
Is it wrong to be angry with your partner that you’re caregiving for? I’ve been angry all day since Amy announced she had a sore lower back which means she has another infection. Nurse came to collect urine and test it but we both know it’s an infection. Hospital called to book another ctscan, nephrostomy…
Rainbows and Black Unicorns 