Tag: melanoma caregivers
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movie
There’s are new movie on Netflix called “leave the world behind”. Can’t comment on the movie cuz we haven’t finished it. But Julia Robert’s speaks a line in the first 2 minutes that made me laugh, “ I hate people”. Yup, me too! I don’t want to be like this but gawd I’m so tired…
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i thought i’d be better
Nope, still mad at people’s insensitivity. I get it. I truly understand why people say stupid things about being positive blah, blah, blah. Right now though, it’s making me angry and I have no patience so it’s better if I just ignore them. Amy got drugs today to deal with infection. Symptoms are bothersome like…
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angry?
Is it wrong to be angry with your partner that you’re caregiving for? I’ve been angry all day since Amy announced she had a sore lower back which means she has another infection. Nurse came to collect urine and test it but we both know it’s an infection. Hospital called to book another ctscan, nephrostomy…
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fed up!
I wasn’t having the greatest day then it got worse! How does that happen? Amy has a sore lower back. Sure sign of yet another bloody infection. She’s down and frustrated. She shopping on line. I’m huffing and puffing and clenching my jaw. Latest round of antibiotics ended just 2 days ago. Here we go…
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more surgery
Met with new surgeon today. He will attempt to insert a large stent into her ureter to see if that will help it stay open thereby eliminating the need for nephrostomy tube and urine bag she wears around her ankle. That’s the goal. No more tubes coming out of her back. It’s general anesthetic but…
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the same
Life is still the same. Amy’s still fighting infections and my anxiety is controlling my life. Amy looks green, her urostomy bag is noisy sounding like a waterfall at times and it smells. Antibiotics? Probably the cause.Me…I hear all the noises and worry that this isn’t normal or healthy. She refuses to ask anyone about…
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results
CT came back clear! Yay! Another new ugly infection, though. Sigh… Amy needed an unusual drug not commonly prescribed so the pharmacist had to call around to ask who stocked it. He is the best. Today, a new urologist called with a dec 5 appointment. No idea what he can do for her but he…
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scan Day
Here are we again. Time for another scan. It’s always unsettling waiting for results and…Amy has another infection. She called the urologist and he won’t prescribe anything until nurse takes a sample on Wednesday. But when her urine smells like ammonia she knows it’s that awful bacterial infection she had last week. Sigh… On a…
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Low
I’ve watched 2 YouTubers that do caregiving for cancer spouses. I’ve noticed they never talk about anger, frustration or irritability. They might talk about fear but not the debilitating fear that comes from waiting for the next phone call, next scan, next symptom. They might mention sadness but not the overwhelming grief that comes from…
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infection
Another one! Bacterial. It’s a bad one.When the results came in I started to shake. PTSD much? Amy looked pale yesterday and her urine smelled like ammonia so, I’m not surprised. A bit of a panic trying to find someone to give her a prescription because the urologist doesn’t work Friday so she went directly…
Rainbows and Black Unicorns 