Tag: carers
-
the same
Life is still the same. Amy’s still fighting infections and my anxiety is controlling my life. Amy looks green, her urostomy bag is noisy sounding like a waterfall at times and it smells. Antibiotics? Probably the cause.Me…I hear all the noises and worry that this isn’t normal or healthy. She refuses to ask anyone about…
-
the wheels have come off
Three surgeons agreed surgery is very risky. Oncologist, urologist and plastic surgeon all agreed she needs surgery but is it too risky? Right now Amy has a ostomy bag for urine and one for poop. She also has a tube coming out of her back to drain urine into a bag worn around her ankle.…
-
too much anger
Today, I’m feeling very sad. I get no support anymore. No one has any idea what life is like for us. It’s been months since anyone asked me about me. I mean really asked me. Not, “how are ya”, crap where they expect me me to say “fine”. I’m not fine. I’m not even ok.…
-
more again
Amy was hospitalized for 8 days. Had surgery on right kidney tube and she’s still recovering. A fistula was discovered and we are waiting for a surgeon to return from holiday. He does robotic surgery and might be able to fix the leak. Her back pain has been very uncomfortable and worrisome. The nurse has…
-
its far from over
It seems like people have gotten back to their regular lives and have forgotten about us and our needs. Do I blame them? No. I’m sure I’ve done the same. We can only hold so much angst. If something is has to go it’s going to be cancer patient and caregiver support so they can…
-
Scanxiety is real
If you’re a cancer patient, survivor or caregiver you’ll be very aware of scanxiety. Every new procedure, scan or doctor visit can bring it on. It’s the unknown that rocks us off our tenuous balance beam. What will they say? What happens next? How will we cope? Scanxiety is so strong today. Surgery is tomorrow…
Rainbows and Black Unicorns 