its far from over

It seems like people have gotten back to their regular lives and have forgotten about us and our needs.

Do I blame them? No. I’m sure I’ve done the same. We can only hold so much angst. If something is has to go it’s going to be cancer patient and caregiver support so they can manage their own crap.

For us it’s never ending. Today, Amy had to have more treatments on her face to control the spread of some form of skin cancer( I can’t remember). Then she has to drive downtown to go to a specialized physio that works with the cancer centre. I think they’ll work on her core muscles and I’m hoping that will help her walk up an incline or stairs. Fatigue and stairs seem to be the last hurdle for her to overcome since her bladder removal.

Tuesday she sees the stoma nurse cuz her bags are causing issues and she gets a nephrostomy tube removed from her back.

Amy has chronic diarrhea ever since her last surgery. They said it was the antibiotics that caused it. But those drugs ceased 5 days ago. No change.

We both agree that she needs to see the colorectal surgeon again. This can’t be healthy.

Upcoming cancer appointments that we know about for sept-nov.

plastic surgeon so she can fix the scar that runs from her groin to her knee.
colorectal surgeon.
urologist.
dietician.
ctscan.
medical oncologist.
dermatologist for full body scan.

I need to find time to go to the dentist for annual check up and get my too big glasses adjusted!